Medically complex dad with portal vein thrombosis with no “conventional” treatment options available
So my dad (59, male) has been named the most medically complex patient from every doctor he’s seen. We have no answers or treatments options, so I’m looking for “non conventional” / different routes. Backstory Active & in shape all of his life until 2022. Sept 2022 - Diverticulitis Surgery- Sigmoid colectomy Developed portal vein thrombosis after diverticulitis surgery.
Oct 2022 - Portal vein thrombosis Had thrombrctomy Left with one clot in his portal vein - unable to break up
June 2024 - Ruptured esophageal varices He does not have cirrhosis, his liver function is fine. He has bandings. Received every 6ish weeks He is not a candidate for TIPS, or a shunt He gets bad bloating
Now (dec 2024) he is in the ER after fainting , throwing up blood. He has developed more varices in his stomach. His portal vein clot has completely blocked the vein. He is intubated due to the bleeding. Just about every doctor has said there is nothing they can do.
Are there any studies, research hospitals, specialty clinics that would be able to work with and treat this complex of a patient? Has anyone even heard of something like this? Every “common” answer or treatment is not an option or hasn’t worked.
Thanks in advanced everyone. We are so desperate at this point.